Grammy's Musings

bubbatd

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#1
As most of you know , I have a wonderful soon to be 6 grandson ( who happens to have Down Syndrome ) There is another member here who happens to have a baby daughter with DS. I'm sure there are other members who have some acquittance or a family member with DS .....plus our hundreds of lurkers. Yesterday a letter was past around in the DS network from a Grandma to be , whose son and DIL just found out that their unborn baby will have DS. She was pleading for information as the doctor said that if they terminate , it has to be done in 5 days. How I bleed for her ! How empty my life would be today had my Nash been sucked out ! I'm not asking for pros or cons ...... just reflect , as this may be something you may have to face someday . I wrote her from Grandma to Grandma . I know Jan wrote and offered her Mauzy's Musings blog. A prayer for this family please .....they live in Florida , so are reaching out . At least Grandma has . To me God choses special parents for special children . He sure did in Nash's case .
 

Buddy'sParents

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#2
It's a scary time for parents when they find things such as these out.

I hope they are able to find the strength and infomation necessary to guide them along.

If there is anything I can do, let me know, Grammy.

I offer my support and my prayers tonight for these folks. :)
 
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#3
I'm sure she'll find comfort and hope in your letter and in Mauzy's Musings too.

Just before I had Jordon, my best friend who was only 22 had a little girl with DS. They had no idea that their baby would be born with DS. From the day that Ashley was born my friend truly felt not only grateful for her healthy baby girl but fortunate to have been chosen to recieve such a gift.

They have 3 children now, Ashley is the oldest at 22 years of age and the light of the family. I'm sure it's very scary for any family to find out that their baby has DS. My husband and I at the time actually felt sorry for our friends, we were foolish. Most of us fear what we don't yet understand, but I know the love and joy that Ashley has brought to our friends lives.

We go to many different functions with them and other family's with children with DS and not a one would tell you that their lives aren't richer for having their very special children.
 

bubbatd

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#4
Agree ! Jan's ultra sounds showed a healthy baby and they didn't want to take the chance with ambio , they wouldn't have aborted anyway . So Nash's having DS was a total surprise to all of us . I've only met one person who wept over their child with DS ......she ,on advise on others ,institutionalized her baby over 40 years ago . When she met Nash , she saw her lost years.
 

Dreeza

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#5
i work with kids with diff mental disabilities...we arent allowed to know specifics, but regardless, they are AMAZING children, SO SO SO SOS SO happy to be alive. I never have a bigger smile than i do at my volunteering.

Happy almost 6th to Nash!!!!!
 

krisykris

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#6
My fiancee's nephew was born w/ down syndrome. The baby's mother had to make the same scary decision on whether or not to continue with the pregnancy. She seriously contemplated ending it, but decided to go through with the pregnancy. Conner was born and had to have a heart surgery shortly after.. but he's a great kid and so happy!

I often wonder what I would have done in the same situation..
 

bubbatd

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#7
I've never met a parent who wished they had terminated . Right now there is a family wondering if they want to keep their baby . A friend in the loop who has 4 girls ( one with DS ) wants to adopt her , if they family chooses to give her up .
 

Doberluv

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#8
When she met Nash , she saw her lost years.
How very sad for her. The love and life they missed out on is beyond measure.

That would be great if this family with the 4 girls adopts her. Maybe some people don't think they can manage and that's fine too. It's important that the child be in a family who can take good care of her and give her all the love she deserves. My thoughts go out to these people with such emotions swirling around in their heads.
 

krisykris

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#9
I've never met a parent who wished they had terminated . Right now there is a family wondering if they want to keep their baby . A friend in the loop who has 4 girls ( one with DS ) wants to adopt her , if they family chooses to give her up .
I think it's great that there is a family there that would love this child should the parents not be able to handle this.
 

gracelund

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#10
There is a seventeen year age difference between my sisters and I and out of their three children two have downs so I was tested at 21 and discovered I had fault X genes if I were ever to have children I would have a two in three chance of the child being born with downs, by the time I was 11 my dad had been diagnosed with motor neurone disease and by 21 my mum had server emphysema so for 10 years I had already being looking after my parents as if I were the adult. I knew if I was ever to become pregnant I would never have a baby aborted so decided on being sterilised now I am older and both my parents are gone I sometime think maybe I would have been a good mum, but to be honest I’m glad I was able to make the decision ahead of time and not once there was someone growing inside of me.
 

showpug

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#11
Life is a gift, DS or not. I refused the tests they want to do when you are pregnant that help to detect DS in the unborn baby. To me, termination was not an option. Life is not perfect and you work with the cards you are dealt!

I hope these people give this baby the chance, life and love it surely deserves!
 

bubbatd

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#12
Too bad Gracelund.....I'm sure it was a hard decision to make , but understand with your situation . You're a good daughter.
 

bubbatd

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#13
Showpug ...did you notice the book " Gifts" in Jan's blog.? It's a wonderful collection of stories from parents whose kids happen to have DS. Jan wrote a chapter for it . They sent a copy to the family whose is trying to decide what to do .
 

Dreeza

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#14
There is a seventeen year age difference between my sisters and I and out of their three children two have downs so I was tested at 21 and discovered I had fault X genes if I were ever to have children I would have a two in three chance of the child being born with downs, by the time I was 11 my dad had been diagnosed with motor neurone disease and by 21 my mum had server emphysema so for 10 years I had already being looking after my parents as if I were the adult. I knew if I was ever to become pregnant I would never have a baby aborted so decided on being sterilised now I am older and both my parents are gone I sometime think maybe I would have been a good mum, but to be honest I’m glad I was able to make the decision ahead of time and not once there was someone growing inside of me.
wow, thats really sad :(

I think i would have done the exact same thing you did.

As much as i have enjoyed working with kids with different disabilities, i would be so so so scared to have one of my own. If i knew i had a chance of having one, i think i would just adopt.
 

bubbatd

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#15
It's hard for me to think of Nash as being " disabled "............but I do agree with some poor kids that have neurological issues . I knew a family whose daughter lived until 17 yrs old in a 6 month's old body .
 

Buddy'sParents

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#16
Life is a gift, DS or not. I refused the tests they want to do when you are pregnant that help to detect DS in the unborn baby. To me, termination was not an option. Life is not perfect and you work with the cards you are dealt!

I hope these people give this baby the chance, life and love it surely deserves!
:hail: :hail: :hail: :hail:
 

Dreeza

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#17
It's hard for me to think of Nash as being " disabled "............but I do agree with some poor kids that have neurological issues . I knew a family whose daughter lived until 17 yrs old in a 6 month's old body .
good point...

As far as i know, i have yet to work with someone with DS...

one of the kids i work with does not even speak, another guy i work with cant walk, can barely talk, and is probably 30 yrs old.

Huge difference!!

showpug, i have thought about what i will do when i am pregnant, and i too think i will refuse the tests, especially since there is zero history of disbility in my family (i know that doesnt really mean much, but still)

I think i would be better off not knowing, cause i know no matter what, i will love my children unconditionally.
 

bubbatd

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#18
There's a reason for everthing ..... sure proved out in our case .
 

squirtsmom

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#19
I found out at 5 months into the pregnancy that Lola would have ds. So what. I didn't care then, and I d on't care now. She is the most wonderful baby a mother could have. She was the light of her daddy' s life, and her sisters are so protective and proud of her. she just turned 1. The fact that so meone would terminated is s omething i don't understand. At all. Life is life, and we s hould cherish it in all for ms, not just the ones we get to choose. I can't w rite more, I am too upset. thanks for those who support.
 

squirtsmom

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#20
I'm sorry, but this makes me see red. I wouldn't have been better off not to have my daughter, I also have 3 others. If she had been my only child, I would have felt just as blessed, because God chose me as her mother, and what a gift. There is nothing like being a mom, especially when you have such a special som eone in your life. You are never the same again. I feel sorry for those who ffeel differently.
 

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