for my sake as well as others..http://www.petitiononline.com/lyme/
please sign
- Thread starter smkie
- Start date
most humbly thank you.
For those that do not know i wasn't for sure until a week ago. This is the reason for my steady decline of health over the last 7 years and the drastic decline of this summer. The standard test is only 36 pecent accurant where as the western blot far more accurate for those who will be going through this in the future. I have learned more about lyme then i want to know and none of it is good. The hope is i have found a good Doctor and there is hope for my vision as well as the rest of me. It won't be an easy road to recovery but at least there is a road. Hopefully action like this petition will save others from the course that i have had to follow of neglect and denial. All a total waste of my life, 7 years is a long time to be sick for no good reason. And since we most of us hikers are dog walkers you should know the bulls eye rash can be purple it isn't always red or pink. In fact some people do not get the bulls eye rash at all. I had a bite 7 years ago (a little longer then that) that was big as a pie plate and dark purple. The doctor i saw for it said he thought it was a spider bite. IF he had been informed, aware, able to treat this for what it really is i could have been spared a great deal of misery and my family might have had a whole different Mother. IT is just such a waste.
For those that do not know i wasn't for sure until a week ago. This is the reason for my steady decline of health over the last 7 years and the drastic decline of this summer. The standard test is only 36 pecent accurant where as the western blot far more accurate for those who will be going through this in the future. I have learned more about lyme then i want to know and none of it is good. The hope is i have found a good Doctor and there is hope for my vision as well as the rest of me. It won't be an easy road to recovery but at least there is a road. Hopefully action like this petition will save others from the course that i have had to follow of neglect and denial. All a total waste of my life, 7 years is a long time to be sick for no good reason. And since we most of us hikers are dog walkers you should know the bulls eye rash can be purple it isn't always red or pink. In fact some people do not get the bulls eye rash at all. I had a bite 7 years ago (a little longer then that) that was big as a pie plate and dark purple. The doctor i saw for it said he thought it was a spider bite. IF he had been informed, aware, able to treat this for what it really is i could have been spared a great deal of misery and my family might have had a whole different Mother. IT is just such a waste.
So sorry to hear that you have Lyme disease. 15 years ago I contracted the disease, and luckily for me it only took me 2 years to be diagnosed and treated. I was lucky to have a doctor who understood that the tests were inaccurate. I suffered from the arthritis, inflamation in the cells of my eyes, seizures, and some cardiac complications. I did have the classic bullseye rash, but it was pegged as a weird bug bite. Anyway, I'm lucky to report that I suffer from no residual side effects of the disease! The hard part is over for you now, the not knowing is the toughest part, and there is a light at the end of the tunnel!!!
in that case write your own govt for lyme is now world wide. That would help.The receptionist at my doc's office said when i asked her what was the furthest someone had traveled for an appt, Canada and then she said they had two coming in from England and one from Peru. Anything that would keep people from having to go through this would be a good idea. I know that she said the England and Peru couldn't find the right help in their countries. Now if this is treated with antibiotics..i wonder why that is!!!!!!!?????
Some interesting info http://www.lymebusters.com/O/ourvoice/ourvoice1.html
Some interesting info http://www.lymebusters.com/O/ourvoice/ourvoice1.html
