Discussion in 'The Fire Hydrant' started by Dizzy, Apr 13, 2013.
Is she ok?
She is always in my thoughts. I hope her and her family are doing ok. <3
I'm always wondering about her and her family. I hope we get an update soon.
I'll try to poke her to pop in
She's doing well, busy being back at work and being with her son.
I really appreciate that you haven't forgotten about me. I haven't forgotten about you either, just very busy and hardly even check more than occasionally clicking "like" on FB. I would love to be on Chaz more, I miss you!! Currently Carter is napping, so I'm hoping to take this time to update you on how I'm doing.
Overall, I'd say I'm doing pretty well, cancer wise. The one year mark has passed, which I think of now trying not to have cancer continue through my daily thoughts. I'm still taking Chemo (pills) 5 days of every 28. Side effects have varied, but nothing severe. Mostly I get very tired, but that's about the worst. I feel very blessed, since it could be much worse.
I still have MRI's done every 3 months. For the last one, my tumor was called "stable". Basically, it hasn't moved since the last MRI (when it had shown some small reduction). I don't mind that it hasn't grown, but it hasn't gotten smaller either. I want this bugger GONE!! My next MRI is to be done in May, and I continue to visualize the tumor getting smaller and smaller.
I'm still on Steroids. Hate being on them, but it probably won't change anytime soon. I hate the chubby cheeks and chin, hate the extra hair everywhere (i've never had this much waxing done!) but the good side is that my hair is growing back nice and thick! I was originally told that my hair around my scar area would never grow back (after radiation). The doctors should know not to say " never" to me
I'm back at work, but only about once a week. It's very nice to be back talking to customers and seeing dogs I've missed!
Carter has grown SO much. I'll see if I can post some pics. He is a wonderful boy. I am, again, very blessed. He's an angel.
I have to run, as I have to do laundry and dishes before he wakes up. I'll try to be on more!!! (((((Hugs)))))
So, so happy to hear you are doing relatively well! I have kept you in my thoughts and am very happy that you are okay! We miss you on Chaz but we know you are busy being a mommy and getting well! Glad you were able to update us some!! How is Sierra?
Does anyone know anything more recent? I haven't been on in so long.
She's still being awesome, amazing and hugely optimistic.
I've been keeping up with her on Facebook. She's going through a really tough period. She had a big scare a few weeks back that landed her in palliative care, etc, but since then she's had a drug switch and a new round of chemo. Last I read she's still in hospital, but is hopefully going home next week.
I don't think things are going great right now, but her and everyone around her are so strong. It's difficult for her to write - her FB updates are a little tricky to read and her husband Matthew handles the longer update posts for her. I love how strong she is. I admire her so much and continue rooting for her,
TL;DR: Things are worse than they were before, but Nilly's as strong and as optimistic as ever. <3 SHe's still fighting hard.
Sending her huge "be well" vibes. She's always been such an inspiration. I hope she continues to kick ass. She is amazing, I hope she knows how many people are thinking about her and pulling for her.
Does she have a support page on FB that's more public? I would like to keel up with her but I don't know her well enough to friend her and I don't wanna invade her privacy. I just know that some people in those situations make a more public page or group to keep the community informed and they like to get a ton of followers. Anything like that that you could link?
Allie... let her know we all miss her here and everyone is thinking of her
Pretty much this.
Yes, let her know we're thinking of her and keeping her in our prayers.
I sent her a PM saying so. I'm sure she'll love it.
Vibes and Good thoughts for Nilly and her family.
I've been paying attention to all her updates from both her and her husband. Every time I see an update I'm always hoping its a good one and that she is feeling better. Really miss her around Chaz, but glad we are Facebook friends so I can still keep up with her.
For those not on Facebook Nilly has taken a turn for the worst and is expected to pass in the next few days. I am just heartbroken for her and her family. Been crying since I found out.
What an inspirational woman. It is just so unfair.
Oh my gosh I can't even...
Oh my gosh There are no words
Please send the family our love. They are in our thoughts and prayers.