Need vibes. Filling you guys in.
- Thread starter vanillasugar
- Start date
From FB a couple hours ago.
Update: February 9. A mixed bag day. Julia had some severe pain today. The pain Doctors came and adjusted her medication. After that we had a very nice visit with my Grandparents and she had very well controlled pain for the rest of the day. Pain and speech were both good up until bed time tonight.
Oncologist came by today and we'll be starting radiation and chemo tomorrow or saturday at the latest. Earlier than expected. Hopefully this jump start on treatment will lead to goo things.
Busy weekend for visitors this week. We're going to have to pace ourselves and make sure she's still getting all the rest she needs.
- Matt
So some mixed news. As Matt says, hopefully the jump on treatment will help in the long run. Depending on scheduling, Kerri and I and hopefully Maf can join us to do a quick run down to visit sometime next week, if not the following week is their reading week and I'm sure something can be worked in then. Of course at this point it may vary day to day how Julia is feeling too.
Kerri has been texting with Julia as Julia is up to it, so we're often getting news fairly quick. Sounds like a lot of visitors on the weekends, but a little quieter through the week.
I need to remember to ask Kerri if she has their house number, if we get some of the snow they are calling for the next few days, I'll sneak in and clear their driveway, unless a neighbour or someone beats me to it.
Update: February 9. A mixed bag day. Julia had some severe pain today. The pain Doctors came and adjusted her medication. After that we had a very nice visit with my Grandparents and she had very well controlled pain for the rest of the day. Pain and speech were both good up until bed time tonight.
Oncologist came by today and we'll be starting radiation and chemo tomorrow or saturday at the latest. Earlier than expected. Hopefully this jump start on treatment will lead to goo things.
Busy weekend for visitors this week. We're going to have to pace ourselves and make sure she's still getting all the rest she needs.
- Matt
So some mixed news. As Matt says, hopefully the jump on treatment will help in the long run. Depending on scheduling, Kerri and I and hopefully Maf can join us to do a quick run down to visit sometime next week, if not the following week is their reading week and I'm sure something can be worked in then. Of course at this point it may vary day to day how Julia is feeling too.
Kerri has been texting with Julia as Julia is up to it, so we're often getting news fairly quick. Sounds like a lot of visitors on the weekends, but a little quieter through the week.
I need to remember to ask Kerri if she has their house number, if we get some of the snow they are calling for the next few days, I'll sneak in and clear their driveway, unless a neighbour or someone beats me to it.
So glad they are going to start this soon. Hopefully everything will run as smooth as possible.
Still sending VIBES for Juila. <3
ETA: I am putting a status up on Facebook. I know a couple that lives in Canada, and her husband went through this shortly after he got out of the Marines. I hope this is okay, if not, please let me know and I will take down the status.
I figured the more thoughts/vibes/prayers/etc she got, the better, even if they don't know Julia.
Still sending VIBES for Juila. <3
ETA: I am putting a status up on Facebook. I know a couple that lives in Canada, and her husband went through this shortly after he got out of the Marines. I hope this is okay, if not, please let me know and I will take down the status.
I figured the more thoughts/vibes/prayers/etc she got, the better, even if they don't know Julia.
I can't say enough that you are all being so wonderful and supportive! Big hugs to everyone because that's all the only thing I can do to show how much I appreciate the thoughts and vibes and prayers, and being so wonderful!
I'm getting more of my ability to type, but I screw up on words talking a lot (one of the problems I've been having), so forgive me if there are mistakes. My typing is a ton better, so hopefully that's fine here
I've had radiation for the last 2 days, and I have a break today but will taking every Monday through Friday for the next 6 weeks. I know some people find radiation scary but I'm doing okay with it. I started Chemo on Friday night too, thankfully one pill a day. I take that every day, and the first day made me wicked nauseous, but I got anti-nausea stuff last night that make a huge difference and I didn't get to throw up last night! WOO!
There are other little things I'm dealing with (my vision trouble, a few pain things related to various things, etc.) but I'm trying to think of all those things as minor things we don't have to worry much.
The big news that might change is that we are not going to be able to stay IN the hospital for the full 6 weeks! They haven't said how long officially they're keeping me for, and they are still working on this for me so I don't think less than a week, but they will be letting me out. There are a lot of programs available who need a place to live/stay, and we're looking into all of those. I'm be most happy that all 3 of us won't be stuck in a hospital room. My poor Carter is growing up in a hospital and I'm not thrilled about that, so I'll be happy that we're let out.
That's all I'm going to post for now. Again, thank you SO MUCH for your wonderful thoughts and vibes and prayers, I am so touched that everyone has been.
I'm getting more of my ability to type, but I screw up on words talking a lot (one of the problems I've been having), so forgive me if there are mistakes. My typing is a ton better, so hopefully that's fine here
I've had radiation for the last 2 days, and I have a break today but will taking every Monday through Friday for the next 6 weeks. I know some people find radiation scary but I'm doing okay with it. I started Chemo on Friday night too, thankfully one pill a day. I take that every day, and the first day made me wicked nauseous, but I got anti-nausea stuff last night that make a huge difference and I didn't get to throw up last night! WOO!
There are other little things I'm dealing with (my vision trouble, a few pain things related to various things, etc.) but I'm trying to think of all those things as minor things we don't have to worry much.
The big news that might change is that we are not going to be able to stay IN the hospital for the full 6 weeks! They haven't said how long officially they're keeping me for, and they are still working on this for me so I don't think less than a week, but they will be letting me out. There are a lot of programs available who need a place to live/stay, and we're looking into all of those. I'm be most happy that all 3 of us won't be stuck in a hospital room. My poor Carter is growing up in a hospital and I'm not thrilled about that, so I'll be happy that we're let out.
That's all I'm going to post for now. Again, thank you SO MUCH for your wonderful thoughts and vibes and prayers, I am so touched that everyone has been.
