Guess who is at the hospital? again. Epilepsy sucks.

Beanie

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#21
You are the only person who can make the determination of when you're done, Fran.

((((HUGS))))

law and order marathons totally make things better.
 

SaraB

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#23
Oh Fran, that sounds absolutely terrifying! My biggest fear in the world is losing my sight so I can't even imagine the chaos that would cause. (((((((hugs)))))) x1 million for you.
 

Doberluv

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#24
Oh gosh Fran! How very scary that must have been. I just can't imagine. I'm so glad you're okay now. (((hugs))) You are actually pretty darn lucky to be who you are...so strong and well grounded. If anyone can plow through these types of episodes and come out none the worse for wear, you can. A lot of people wouldn't be as able to stand up to it. (((hugs)))
 

Fran101

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#25
You guys are awesome ((HUGS))
I'm being released from the dungeon today, thank goodness.

but I think as far as medications go, for now, enough is enough. I need a break and all the stress of impending doom every time they try something new certainly isn't helping lol



AND ALL THESE GIFS ARE THE BEST!!! LOL

this one had me spitting out my orange juice!! lol IS THAT THE SHAKE WEIGHT?!?! :rofl1:
 

drmom777

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#26
That sounds truly terrifying. I'm glad you were able to make your needs known and get the help you needed. You actually did a good job under tough circumstances, even though you were understandably terrified. I hope you do find the magic combination that wor4ks for you, but taking a drug holiday can be a really good idea. I know you will gird your loins and step back into the battle when you are ready.

I'm holding you in the light. If you want an explanation of that, let me know, but rest assured it's a good thing. Also I agree with you about the forum venting thing, there seems to be something to it. I'm considering doing it myself.
 

~Jessie~

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#27
That sounds terrifying, Fran.

Lots and lots and LOTS of (((((((((((((((((((((HUGS)))))))))))))))))))))))

Big and bold pink hugs, which are the most powerful :D

If I lived near you, I'd sneak Emma into the hospital to cheer you up! She'd probably end up eating your red jello, though :p
 

Dakotah

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#28
(((HUGS)))
You are so strong. & continue staying that way.

We are all here for you <3
 
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#29
Fran, what an absolutely horrific experience!

You know how people always say, "what doesn't kill you makes you stronger?"

Don't you just want to slap 'em for that sometimes? ;)

 

*blackrose

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#30
(((HUGS))) That's all I can really offer, and say we're all here for you whenever you need us.
 

Miakoda

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#31
Yikes. I'm so sorry. :(


We're having problems with Cole's meds in trying to keep a constant level. He's on Trileptal (it's one of those damned if you do, damned if you don't medications). Unfortunately for Cole, since his seizures originate from the frontal lobe and are general (there is no single point of origin, but rather a general misfiring all over the frontal lobe), there are currently only 2 medications for him right now. It should be noted that Cole's epilepsy is a result of brain damage from the viral encephalitis when he just turned 2.

I do worry about him as he grows up. If I had a magic wand and could take it all away, I would in a heartbeat.
 

-bogart-

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#32
Yikes. I'm so sorry. :(


We're having problems with Cole's meds in trying to keep a constant level. He's on Trileptal (it's one of those damned if you do, damned if you don't medications). Unfortunately for Cole, since his seizures originate from the frontal lobe and are general (there is no single point of origin, but rather a general misfiring all over the frontal lobe), there are currently only 2 medications for him right now. It should be noted that Cole's epilepsy is a result of brain damage from the viral encephalitis when he just turned 2.

I do worry about him as he grows up. If I had a magic wand and could take it all away, I would in a heartbeat.

/THREAD HIGHJACK

Seriously? Caleb is in his left frontal lobe due to unconfirmed case of west nile when he was 3 though. Caleb is on Keppra.

/end thread jack.


Fran , I am so glad ya going home , i think a med break is important sometimes. i wanted to do that with Caleb , but with his i cant.
 

RedHotDobe

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#34
I'm sorry, Fran. :( My friend has epilepsy, and he made the choice to stop taking medication. I'm not sure what he was taking or how many different medications he tried, but I do know that they weren't doing much to help him so he decided to just stop taking them. He's learned to be able to tell when a seizure is coming and how to de-escalate it a bit. He's completely self-sufficient and manages just fine. :) If you're unable to find a medication that works for you, I hope you can achieve the same. You can do it!
 

Zoom

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#35
Fran, I am so, so sorry you had to go through with that. How completely and utterly terrifying! :yikes:

But, on the bright side...LOOKIT ALL THE PRETTY NEW GIFS YOU GOT!
 

ACooper

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#36
(((((HUGS)))))) So glad you are ok, and doubly glad you are taken care of by wonderful people :)
 
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#37
Fran I'm so sorry you had such a terrifying experience! Kudos to you for being such an upbeat gal who, while havnig to deal with a condition that causes so much upheaval in her life, can still appreciate all that is good in her life as well. You are truly amazing!
 

Shai

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#39
Best of luck, Fran. More good vibes headed your way.

Please be careful with the med break. My roommate in college (epilepsy, not sure what kind) decided to wean herself back on meds (she ran it by her doc first) and it didn't end well.
 

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